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Lyme Disease Resources
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Texas Lyme Support Group - Category: Start / Lyme Disease / Support Groups / State / Texas
Advice and support for patients with Lyme Disease in Texas.
- Added on: 20.09.2009 | hits: 324
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- NatCapLyme: Shenandoah Valley Chapter
- Category: Start / Lyme Disease / Support Groups / State / Virginia
In an effort to respond to the growing needs of Lyme patients in Virginia the National Capital Lyme and Tick-Borne Disease Association is establishing a patient/caregiver support group for the central Virginia area of the Shenandoah Valley. The Shenandoah chapter will cover the area from Front Royal to Roanoke. The new group will meet monthly beginning Saturday, May 19, 2007 from 10:00-12:00. The first gathering will be at the Bridgewater Library at 118 Mt Crawford Ave. in Bridgewater, Virginia. Subsequent meetings will be announced via email after a permanent location and time have been established.
- Added on: 17.10.2009 | hits: 247
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- NatCapLyme: Hampton Roads Chapter
- Category: Start / Lyme Disease / Support Groups / State / Virginia
In an effort to respond to the growing needs of Lyme patients in Virginia, the National Capital Lyme and Tick-Borne Disease Association is establishing a patient/caregiver support and education group in the southeast/coastal area of the state. The Hampton Roads Chapter will encompass the cities of Norfolk, Virginia Beach, Chesapeake, Portsmouth, and Suffolk on the Southside and Hampton and Newport News on the Peninsula. The group welcomes all those in the greater Tidewater area, including the Eastern Shore, more northerly points on the Peninsula (such as Williamsburg), and northeastern North Carolina, including the Outer Banks. Meetings are usually held the third Sunday of each month from 2 p.m. to 4 p.m. at 4560 South Boulevard, Suite 310, Virginia Beach, VA 23452. Occasionally, other locations are used, so please contact Joy Walker, chapter director, at joy@natcaplyme.org for specific meeting information.
- Added on: 17.10.2009 | hits: 237
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- NatCapLyme: Central Virginia Chapter
- Category: Start / Lyme Disease / Support Groups / State / Virginia
Responding to the growing needs of Lyme patients in Virginia, the National Capital Lyme and Tick-Borne Disease Association has established a patient/caregiver support and education group in central Virginia. The chapter will serve Lyme sufferers and supporters from the counties, cities and towns around Lynchburg, Roanoke, Farmville, Lovingston, Halifax County and Charlottesville. The group welcomes everyone with an interest in Lyme and Tick-Borne diseases. The first gathering will be Saturday June 7th, 2PM at the Central Virginia Community College, Merritt Hall in Room 5207. Subsequent meetings will be announced after a regular meeting date has been established.
- Added on: 17.10.2009 | hits: 227
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- NatCapLyme: Fairfax Chapter
- Category: Start / Lyme Disease / Support Groups / State / Virginia
In an effort to respond to the growing needs of Lyme patients in the Metropolitan area, the National Capital Lyme and Tick-Borne Disease Association is establishing a patient/caregiver support group for Fairfax County in addition to the monthly first Sunday afternoon meetings at Sibley Hospital in Washington, DC. The new group will meet monthly beginning Thursday, March 13th, 2008 at the Reston Regional Library from 12-1:30pm. Subsequent meetings will be announced via email after a permanent location and time are established.
- Added on: 17.10.2009 | hits: 223
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- Australia TAGS
- Category: Start / Lyme Disease / Support Groups / International
Tick Alert disseminates information about ticks to the general community - principally the Paralysis Tick* of eastern Australia.
- Added on: 20.09.2009 | hits: 214
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- NatCapLyme: Montgomery County Chapter
- Category: Start / Lyme Disease / Support Groups / State / Maryland
In an effort to respond to the growing needs of Lyme patients in Maryland, the National Capital Lyme & Tick-Borne Disease Association is establishing a patient/caregiver support group in Montgomery County, MD. NatCapLyme support group meetings are held at Sibley Hospital in Washington D.C. on the first Sunday of the month. Lyme patients and their families now have an additional choice and more flexibility for support in the region. There is also a monthly chapter meeting in Fairfax County, VA. Consult our website for all chapter meeting times and locations www.natcaplyme.org The new Montgomery Maryland chapter will meet the third Monday of each month from 6:30-8:30pm, beginning on Monday, July 20th, 2009 at Healthtrax Fitness and Wellness Center in Germantown, Maryland. Healthrax is located right off of Exit 16 (toward Damascus) of I-270 in Germantown. The address is 20500 Seneca Meadows Parkway, Germantown, MD 20874. The meetings will be held in the second floor conference room.
- Added on: 17.10.2009 | hits: 208
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- NatCapLyme
- Category: Start / Lyme Disease / Support Groups / State / District of Columbia
The National Capital Lyme and Tick-Borne Disease Association is committed to helping patients diagnosed with tick-borne infections through education, support, and review of public policies concerning these diseases. We encourage individuals to advocate for themselves in their goal to regain their health. We offer patient support group meetings, information, speakers, legislative developments, and news updates. Everyone who is interested in tick-borne infections is welcome to attend our support groups and programs.
The National Capital Lyme and Tick-Borne Disease Association is a 501(c)(3) nonprofit organization.- Added on: 16.07.2009 | hits: 207
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- Iowa Lyme Disease Association
- Category: Start / Lyme Disease / Support Groups / State / Iowa
Welcome! Our purpose is to educate with the facts about Lyme disease, its diagnosis and treatment and to provide support for patients and others wanting more information. Our information is supported by credible research and we will keep you updated on any new research that pertains to Lyme disease. Treatment options are listed and links provided so you can find a knowledgeable doctor in your area. Lastly we provide patient support and encourage interaction among patients and action by patients to support Lyme disease awareness.
- Added on: 20.09.2009 | hits: 200
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- NatCapLyme: Howard County Chapter
- Category: Start / Lyme Disease / Support Groups / State / Maryland
The National Capital Lyme and Tick-Borne Disease Association Howard County Chapter's goals are to share information with our members on new research and treatments for the chronic forms of Lyme and other tick borne diseases, and to raise awareness in government and the lay and medical community.
- Added on: 17.10.2009 | hits: 183
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- Zikula
- Category: Start / Content Management
No matter what your needs, Zikula can provide the solution. Be that a corporate presence with ecommerce, a simple blog or a community portal, Zikula can do it all.
- Added on: 17.07.2009 | hits: 178
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- Australian Department of Medical Entomology
- Category: Start / Lyme Disease / Support Groups / International
LYME DISEASE IN AUSTRALIA
History - Australia
The first Australian cases of a syndrome consistent with Lyme disease were reported from the Hunter Valley region of New South Wales in 1982. Serology was initially negative on one of the 6 patients, but later reported as positive in low titre. Cases of EM with febrile illness were reported in 1986 from the south and central coasts of New South Wales. All had negative serology. In Queensland, from 1986 to 1989, the State Health Laboratories tested 1,247 patients for B.burgdorferi antibody using an IFAT and reported 186 (15%) positive (titre 64) titres. In none of these cases was confirmatory serology (WB) undertaken.
In 1988 at Westmead Hospital, a multidisciplinary investigation of putative LD in coastal New South Wales began, encompassing clinical, serological, vector and reservoir host studies.- Added on: 20.09.2009 | hits: 176
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- Canadian Lyme Disease Foundation
- Category: Start / Lyme Disease / Support Groups / International
Canadian Lyme Disease Foundation (CanLyme)is a federally registered charitable organization (864437603RR0001) dedicated to promoting research, education, diagnosis and treatment of Lyme and Associated Diseases since 2003
- Added on: 20.09.2009 | hits: 167
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- Maine Lyme Disease Group
- Category: Start / Lyme Disease / Support Groups / State / Maine
Maine Lyme Disease is an information and support group for the people of Maine who have Lyme Disease, or those who need more information regarding tick borne diseases. Apply to join only if you live in Maine!
- Added on: 20.09.2009 | hits: 148
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- Lyme Help.org
- Category: Start / Lyme Disease / Support Groups / State / Massachusetts
Lyme Disease Symptoms, Treatment & Lyme Disease Info.
- Added on: 20.09.2009 | hits: 123
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- The Lyme Disease Foundation
- Category: Start / Lyme Disease / Support Groups / National
The Lyme Disease Foundation (LDF) is the premier nonprofit dedicated to finding solutions for tick-borne disorders. Realizing the ability to find solutions involves a multi-discipline effort, the LDF includes the four cornerstones of progress (businesses, patients, government, and the medical community) to work together to find solutions to tick-borne disorders. The LDF is the only tick-related charity to meet federal standards to qualify as national nonprofit and has strong ties to the international scientific community. The LDF has an active media outreach, education (medical and public) and research programs. The headquarters is staffed by a team of full-time professionals, has a modest library of articles, is highly computerized, and has a database of about 100,000 tick-borne disease aware households. 87% of every donation goes directly to programs, with 13% supporting those programs. The LDF was cofounded in 1988 by Karen Vanderhoof-Forschner, MBA, CPCU, CLU and Thomas E. Forschner, MBA, CPA at the request of researchers seeking a scientific forum where they could present a wide range of research results, conduct vigorous debate, nurture friendships, and foster new collaborations. They believed Lyme disease was serious and pervasive enough to need its own staffed nonprofit. This diverse and dedicated team of board members trailblazed into a world unaware of this disease, raising awareness from 0% to 88% within 2 years. The Forschner's were seeking help for Jamie their son, who was born with and suffered from Lyme disease. Although Jamie died in 1991 during a relapse, this team continues on in the hope that others will be spared from suffering similar anguish. Tick-borne disorders include: babesiosis, cat scratch disease (Bartonella), ehrlichiosis, Colorado tick fever, Lyme disease, Masters' disease, Query fever (potential biowarfare agent), Powassan encephalitis, relapsing fever (potential biowarfare agent), Rocky Mountain spotted fever, tick paralysis, & tularemia (potential biowarfare agent).
- Added on: 20.09.2009 | hits: 121
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- Oregon Lyme Disease Network Online Forum
- Category: Start / Lyme Disease / Support Groups / State / Oregon
We accept all patients but please note there are CA and WA only specific groups and we recommend you include CA and Washington groups if you live in CA or Washington as we don't recognize all factors that affect CA and Washington patients. We also serve Idaho patients until Kathy gets the Idaho network up and running.
A recent Oregon Survey shows: 70% of the patients who responded in our survey were on ADA
75% of the patients had changed from full time status to part time or unemployed status due to lyme disease of themselves or a family member.
22 patients responded as primary symptoms were headaches, stiff neck and myalgia.(common lyme disease symptoms) Of those only 10 were diagnosed in Oregon and 6 were overturned by Infectious Disease Physicians. All of them had previous diagnosis of either ALS, MS or Fibromyalgia, and an average of 6.1 specialty doctors were seen prior to being diagnoses with lyme disease. 19 of the 22 are seeing out of state physicians, the other four are not getting treatment due to geographical/financial issues. 11 are CDC positive by Western Blot, 7 are CDC positive by ELISA, and 4 are positive by PCR (DNA test for lyme disease spirochetes). ----------------------------------------------------
This online forum serves to complete the gaps for the state face to face support groups, keeps everyone up to date on support group meetings and also will help to serve as a question/answer board for lyme disease and lyme disease related issues.
Oregon Lyme Disease Network addresses different aspects of lyme disease and works closely with Washington and California to help create a West Coast community aware- Added on: 20.09.2009 | hits: 116
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- Arizona Lyme Disease Association
- Category: Start / Lyme Disease / Support Groups / State / Arizona
The mission of the Arizona Lyme Disease Association is threefold: 1. Support, 2. Education, 3. Advocacy.
We support those who are ill with Lyme and associated diseases, while we educate the public and the medical community. We also advocate for better knowledge of Lyme disease within the medical community, and for research into and development of new treatment methods.
AzLDA Arizona Lyme Disease Association is a 501(c)(3) Non-Profit affiliate of NEST, Inc.- Added on: 20.09.2009 | hits: 109
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- Sonoma County Lyme Support
- Category: Start / Lyme Disease / Support Groups / State / California
Welcome to Sonoma County Lyme Support! This forum is for those in Sonoma County, CA who are dealing with tick borne illnesses, including Lyme, Babesia, Ehrlichia, and Bartonella. This is a place to share resources, experience, and support. We are currently closed to new members. You may want to check out the California Lyme Disease Support Group email list, and Lymenet.org's active message boards.
You may check out our Links and Files sections, which are open to those not on our list.
DISCLAIMER: All information posted on this site is the opinion of the author(s)and is provided for educational purposes only. It is not to be construed as medical advice. Please consult your doctor for the appropriateness of any treatment.- Added on: 20.09.2009 | hits: 90
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- The San Antonio Lyme Disease Meetup Group
- Category: Start / Lyme Disease / Support Groups / State / Texas
Meet with local people affected by Lyme Disease, Lupus, Fibromyalgia, CFS, and other related diseases for discussion, information, and support.
- Added on: 20.09.2009 | hits: 86
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- The West Coast Connection
- Category: Start / Lyme Disease / Support Groups / Regional
(To Unite All Western States) For those who have lyme disease or related illnesses.
For anyone who might have lyme or related.
For anyone who knows someone that has or might have lyme or related.
For anyone interested in lyme disease or related.
Goal - communicate and become organized and to make this a center point of information and support for the Western States- Added on: 20.09.2009 | hits: 86
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- Lyme Disease Support Group of Alabama
- Category: Start / Lyme Disease / Support Groups / State / Alabama
The Lyme Disease Support Group of Alabama was formed in 1998 to provide information to the public and medical community about Lyme disease.
- Added on: 20.09.2009 | hits: 84
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- The National Lyme Disease Memorial Park Project
- Category: Start / Lyme Disease / Support Groups / National
The National Lyme Disease Memorial Park Project is dedicated to all who have experienced the ramifications of Lyme and other tickborne associated diseases.
This Project encompasses both a virtual and a physical place. It will serve everyone who has been touched by these devastating illnesses -the patients who struggle to recover their health and their lives, the family and friends who love them, the advocates, activists and researchers fighting to make necessary changes and the physicians who are providing us help with steadfast and extraordinary courage.
The Memorial website was created for and will be maintained as a virtual educational hub for those who have personally dealt with or who now question the seriousness of chronic Lyme and tickborne associated fatalities. In particular, it will list names and some condensed obituaries of those who have passed away, so that we may not forget them or the high toll of these diseases.- Added on: 20.09.2009 | hits: 83
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- The California Lyme Disease Association (CALDA)
- Category: Start / Lyme Disease / Support Groups / State / California
The California Lyme Disease Association (CALDA) is a non-profit corporation acting as the central voice for all tick-borne disease issues in California and a supporting voice for national issues. Through research, advocacy, and education of the public and healthcare professionals, CALDA seeks to prevent tick-borne diseases, encourage early diagnosis, and improve the quality of healthcare provided to people with tick-borne diseases.
- Added on: 20.09.2009 | hits: 73
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- Santa Cruz Lyme Support Group
- Category: Start / Lyme Disease / Support Groups / State / California
This group is for the communication among the participants of Santa Cruz Lyme Support Group.
The membership is open to those who meet the two criterion below: 1. A Lyme patient or a care-taker of a Lyme patient
2. The Lyme patient lives in Santa Cruz or attends Santa Cruz support group meeting.
Steps to join (and ignore this if you were already a member):
1. Click on the link for joining on this page and follow direction.
2. When you are asked the reason to join, state how you fit the qualification described above.
3. Your will receive an email asking for your qualification. If you've already given the answer in step 2 above, disregard it.
4. Wait for the notice email of the status of your membership. Once you are approved, you will start receiving email from this group.
You must communicate your qualification in this process. Otherwise, you will not be approved.- Added on: 20.09.2009 | hits: 61
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About Me
- I have Lyme Disease and I am in no way an expert nor am I giving any type of professional advise on the topic. I am tired of living with Lyme Disease and it's many symptoms, but I am stuck until they find a cure or something that makes me feel better. I remember when I first got diagnosed with Lyme Disease and how I felt so hopeless and helpless, I felt stuck. Today I am no longer hopeless and helpless and my hope is that I can help at least one person get out of that feeling.
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- 02-06-2012
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No upcoming events.Prevention Tips
2. WEAR LONG SLEEVES & LONG PANTS. Tuck the legs into your socks. Light-colored clothes make it easier to spot ticks.
3. STAY IN THE MIDDLE OF TRAILS. Don't brush against leaves and weeds or hike through the underbrush.
4. USE AN INSECT REPELLENT. Follow manufacturers directions.Look for ones containing 25-35% DEET.
5. CHECK FOR TICKS OFTEN. Crawling ones can be brushed off carefully.
6. PLACE CLOTHES IN A DRYER. A 1/2 hr. dryer high heat cycle will destroy ticks which might be hiding in clothing. the scalp, and behind the ears.
7. DO A THOROUGH TICK CHECK. Ticks crawl upward until they are stopped..Check legs, waistline, bra line, and armpits, and ask a family member to help check scalp, back, etc.
8. USE REPELLENTS AND CHECK YOUR PETS before they enter the house for crawling or attached ticks. 9. HUNTERS AND TRAPPERS SHOULD HANG ANIMAL CARCASSES AWAY FROM BUILDINGS. Put a bucket of bleach water under the animal to catch any ticks falling off. Wear rubber gloves when field dressing or handling meat to minimize chances for infection.