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Lyme Disease Resources
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Texas Lyme Support Group - Category: Start / Lyme Disease / Support Groups / State / Texas
Advice and support for patients with Lyme Disease in Texas.
- Added on: 20.09.2009 | hits: 325
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- NatCapLyme: Shenandoah Valley Chapter
- Category: Start / Lyme Disease / Support Groups / State / Virginia
In an effort to respond to the growing needs of Lyme patients in Virginia the National Capital Lyme and Tick-Borne Disease Association is establishing a patient/caregiver support group for the central Virginia area of the Shenandoah Valley. The Shenandoah chapter will cover the area from Front Royal to Roanoke. The new group will meet monthly beginning Saturday, May 19, 2007 from 10:00-12:00. The first gathering will be at the Bridgewater Library at 118 Mt Crawford Ave. in Bridgewater, Virginia. Subsequent meetings will be announced via email after a permanent location and time have been established.
- Added on: 17.10.2009 | hits: 247
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- NatCapLyme: Hampton Roads Chapter
- Category: Start / Lyme Disease / Support Groups / State / Virginia
In an effort to respond to the growing needs of Lyme patients in Virginia, the National Capital Lyme and Tick-Borne Disease Association is establishing a patient/caregiver support and education group in the southeast/coastal area of the state. The Hampton Roads Chapter will encompass the cities of Norfolk, Virginia Beach, Chesapeake, Portsmouth, and Suffolk on the Southside and Hampton and Newport News on the Peninsula. The group welcomes all those in the greater Tidewater area, including the Eastern Shore, more northerly points on the Peninsula (such as Williamsburg), and northeastern North Carolina, including the Outer Banks. Meetings are usually held the third Sunday of each month from 2 p.m. to 4 p.m. at 4560 South Boulevard, Suite 310, Virginia Beach, VA 23452. Occasionally, other locations are used, so please contact Joy Walker, chapter director, at joy@natcaplyme.org for specific meeting information.
- Added on: 17.10.2009 | hits: 237
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- NatCapLyme: Central Virginia Chapter
- Category: Start / Lyme Disease / Support Groups / State / Virginia
Responding to the growing needs of Lyme patients in Virginia, the National Capital Lyme and Tick-Borne Disease Association has established a patient/caregiver support and education group in central Virginia. The chapter will serve Lyme sufferers and supporters from the counties, cities and towns around Lynchburg, Roanoke, Farmville, Lovingston, Halifax County and Charlottesville. The group welcomes everyone with an interest in Lyme and Tick-Borne diseases. The first gathering will be Saturday June 7th, 2PM at the Central Virginia Community College, Merritt Hall in Room 5207. Subsequent meetings will be announced after a regular meeting date has been established.
- Added on: 17.10.2009 | hits: 227
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- NatCapLyme: Fairfax Chapter
- Category: Start / Lyme Disease / Support Groups / State / Virginia
In an effort to respond to the growing needs of Lyme patients in the Metropolitan area, the National Capital Lyme and Tick-Borne Disease Association is establishing a patient/caregiver support group for Fairfax County in addition to the monthly first Sunday afternoon meetings at Sibley Hospital in Washington, DC. The new group will meet monthly beginning Thursday, March 13th, 2008 at the Reston Regional Library from 12-1:30pm. Subsequent meetings will be announced via email after a permanent location and time are established.
- Added on: 17.10.2009 | hits: 224
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- Australia TAGS
- Category: Start / Lyme Disease / Support Groups / International
Tick Alert disseminates information about ticks to the general community - principally the Paralysis Tick* of eastern Australia.
- Added on: 20.09.2009 | hits: 214
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- NatCapLyme: Montgomery County Chapter
- Category: Start / Lyme Disease / Support Groups / State / Maryland
In an effort to respond to the growing needs of Lyme patients in Maryland, the National Capital Lyme & Tick-Borne Disease Association is establishing a patient/caregiver support group in Montgomery County, MD. NatCapLyme support group meetings are held at Sibley Hospital in Washington D.C. on the first Sunday of the month. Lyme patients and their families now have an additional choice and more flexibility for support in the region. There is also a monthly chapter meeting in Fairfax County, VA. Consult our website for all chapter meeting times and locations www.natcaplyme.org The new Montgomery Maryland chapter will meet the third Monday of each month from 6:30-8:30pm, beginning on Monday, July 20th, 2009 at Healthtrax Fitness and Wellness Center in Germantown, Maryland. Healthrax is located right off of Exit 16 (toward Damascus) of I-270 in Germantown. The address is 20500 Seneca Meadows Parkway, Germantown, MD 20874. The meetings will be held in the second floor conference room.
- Added on: 17.10.2009 | hits: 208
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- NatCapLyme
- Category: Start / Lyme Disease / Support Groups / State / District of Columbia
The National Capital Lyme and Tick-Borne Disease Association is committed to helping patients diagnosed with tick-borne infections through education, support, and review of public policies concerning these diseases. We encourage individuals to advocate for themselves in their goal to regain their health. We offer patient support group meetings, information, speakers, legislative developments, and news updates. Everyone who is interested in tick-borne infections is welcome to attend our support groups and programs.
The National Capital Lyme and Tick-Borne Disease Association is a 501(c)(3) nonprofit organization.- Added on: 16.07.2009 | hits: 207
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- Iowa Lyme Disease Association
- Category: Start / Lyme Disease / Support Groups / State / Iowa
Welcome! Our purpose is to educate with the facts about Lyme disease, its diagnosis and treatment and to provide support for patients and others wanting more information. Our information is supported by credible research and we will keep you updated on any new research that pertains to Lyme disease. Treatment options are listed and links provided so you can find a knowledgeable doctor in your area. Lastly we provide patient support and encourage interaction among patients and action by patients to support Lyme disease awareness.
- Added on: 20.09.2009 | hits: 201
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- NatCapLyme: Howard County Chapter
- Category: Start / Lyme Disease / Support Groups / State / Maryland
The National Capital Lyme and Tick-Borne Disease Association Howard County Chapter's goals are to share information with our members on new research and treatments for the chronic forms of Lyme and other tick borne diseases, and to raise awareness in government and the lay and medical community.
- Added on: 17.10.2009 | hits: 184
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- Zikula
- Category: Start / Content Management
No matter what your needs, Zikula can provide the solution. Be that a corporate presence with ecommerce, a simple blog or a community portal, Zikula can do it all.
- Added on: 17.07.2009 | hits: 179
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- Australian Department of Medical Entomology
- Category: Start / Lyme Disease / Support Groups / International
LYME DISEASE IN AUSTRALIA
History - Australia
The first Australian cases of a syndrome consistent with Lyme disease were reported from the Hunter Valley region of New South Wales in 1982. Serology was initially negative on one of the 6 patients, but later reported as positive in low titre. Cases of EM with febrile illness were reported in 1986 from the south and central coasts of New South Wales. All had negative serology. In Queensland, from 1986 to 1989, the State Health Laboratories tested 1,247 patients for B.burgdorferi antibody using an IFAT and reported 186 (15%) positive (titre 64) titres. In none of these cases was confirmatory serology (WB) undertaken.
In 1988 at Westmead Hospital, a multidisciplinary investigation of putative LD in coastal New South Wales began, encompassing clinical, serological, vector and reservoir host studies.- Added on: 20.09.2009 | hits: 176
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- Canadian Lyme Disease Foundation
- Category: Start / Lyme Disease / Support Groups / International
Canadian Lyme Disease Foundation (CanLyme)is a federally registered charitable organization (864437603RR0001) dedicated to promoting research, education, diagnosis and treatment of Lyme and Associated Diseases since 2003
- Added on: 20.09.2009 | hits: 168
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- Maine Lyme Disease Group
- Category: Start / Lyme Disease / Support Groups / State / Maine
Maine Lyme Disease is an information and support group for the people of Maine who have Lyme Disease, or those who need more information regarding tick borne diseases. Apply to join only if you live in Maine!
- Added on: 20.09.2009 | hits: 149
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- Lyme Help.org
- Category: Start / Lyme Disease / Support Groups / State / Massachusetts
Lyme Disease Symptoms, Treatment & Lyme Disease Info.
- Added on: 20.09.2009 | hits: 124
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- The Lyme Disease Foundation
- Category: Start / Lyme Disease / Support Groups / National
The Lyme Disease Foundation (LDF) is the premier nonprofit dedicated to finding solutions for tick-borne disorders. Realizing the ability to find solutions involves a multi-discipline effort, the LDF includes the four cornerstones of progress (businesses, patients, government, and the medical community) to work together to find solutions to tick-borne disorders. The LDF is the only tick-related charity to meet federal standards to qualify as national nonprofit and has strong ties to the international scientific community. The LDF has an active media outreach, education (medical and public) and research programs. The headquarters is staffed by a team of full-time professionals, has a modest library of articles, is highly computerized, and has a database of about 100,000 tick-borne disease aware households. 87% of every donation goes directly to programs, with 13% supporting those programs. The LDF was cofounded in 1988 by Karen Vanderhoof-Forschner, MBA, CPCU, CLU and Thomas E. Forschner, MBA, CPA at the request of researchers seeking a scientific forum where they could present a wide range of research results, conduct vigorous debate, nurture friendships, and foster new collaborations. They believed Lyme disease was serious and pervasive enough to need its own staffed nonprofit. This diverse and dedicated team of board members trailblazed into a world unaware of this disease, raising awareness from 0% to 88% within 2 years. The Forschner's were seeking help for Jamie their son, who was born with and suffered from Lyme disease. Although Jamie died in 1991 during a relapse, this team continues on in the hope that others will be spared from suffering similar anguish. Tick-borne disorders include: babesiosis, cat scratch disease (Bartonella), ehrlichiosis, Colorado tick fever, Lyme disease, Masters' disease, Query fever (potential biowarfare agent), Powassan encephalitis, relapsing fever (potential biowarfare agent), Rocky Mountain spotted fever, tick paralysis, & tularemia (potential biowarfare agent).
- Added on: 20.09.2009 | hits: 122
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- Oregon Lyme Disease Network Online Forum
- Category: Start / Lyme Disease / Support Groups / State / Oregon
We accept all patients but please note there are CA and WA only specific groups and we recommend you include CA and Washington groups if you live in CA or Washington as we don't recognize all factors that affect CA and Washington patients. We also serve Idaho patients until Kathy gets the Idaho network up and running.
A recent Oregon Survey shows: 70% of the patients who responded in our survey were on ADA
75% of the patients had changed from full time status to part time or unemployed status due to lyme disease of themselves or a family member.
22 patients responded as primary symptoms were headaches, stiff neck and myalgia.(common lyme disease symptoms) Of those only 10 were diagnosed in Oregon and 6 were overturned by Infectious Disease Physicians. All of them had previous diagnosis of either ALS, MS or Fibromyalgia, and an average of 6.1 specialty doctors were seen prior to being diagnoses with lyme disease. 19 of the 22 are seeing out of state physicians, the other four are not getting treatment due to geographical/financial issues. 11 are CDC positive by Western Blot, 7 are CDC positive by ELISA, and 4 are positive by PCR (DNA test for lyme disease spirochetes). ----------------------------------------------------
This online forum serves to complete the gaps for the state face to face support groups, keeps everyone up to date on support group meetings and also will help to serve as a question/answer board for lyme disease and lyme disease related issues.
Oregon Lyme Disease Network addresses different aspects of lyme disease and works closely with Washington and California to help create a West Coast community aware- Added on: 20.09.2009 | hits: 116
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- Arizona Lyme Disease Association
- Category: Start / Lyme Disease / Support Groups / State / Arizona
The mission of the Arizona Lyme Disease Association is threefold: 1. Support, 2. Education, 3. Advocacy.
We support those who are ill with Lyme and associated diseases, while we educate the public and the medical community. We also advocate for better knowledge of Lyme disease within the medical community, and for research into and development of new treatment methods.
AzLDA Arizona Lyme Disease Association is a 501(c)(3) Non-Profit affiliate of NEST, Inc.- Added on: 20.09.2009 | hits: 109
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- Sonoma County Lyme Support
- Category: Start / Lyme Disease / Support Groups / State / California
Welcome to Sonoma County Lyme Support! This forum is for those in Sonoma County, CA who are dealing with tick borne illnesses, including Lyme, Babesia, Ehrlichia, and Bartonella. This is a place to share resources, experience, and support. We are currently closed to new members. You may want to check out the California Lyme Disease Support Group email list, and Lymenet.org's active message boards.
You may check out our Links and Files sections, which are open to those not on our list.
DISCLAIMER: All information posted on this site is the opinion of the author(s)and is provided for educational purposes only. It is not to be construed as medical advice. Please consult your doctor for the appropriateness of any treatment.- Added on: 20.09.2009 | hits: 90
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- The San Antonio Lyme Disease Meetup Group
- Category: Start / Lyme Disease / Support Groups / State / Texas
Meet with local people affected by Lyme Disease, Lupus, Fibromyalgia, CFS, and other related diseases for discussion, information, and support.
- Added on: 20.09.2009 | hits: 86
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- The West Coast Connection
- Category: Start / Lyme Disease / Support Groups / Regional
(To Unite All Western States) For those who have lyme disease or related illnesses.
For anyone who might have lyme or related.
For anyone who knows someone that has or might have lyme or related.
For anyone interested in lyme disease or related.
Goal - communicate and become organized and to make this a center point of information and support for the Western States- Added on: 20.09.2009 | hits: 86
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- Lyme Disease Support Group of Alabama
- Category: Start / Lyme Disease / Support Groups / State / Alabama
The Lyme Disease Support Group of Alabama was formed in 1998 to provide information to the public and medical community about Lyme disease.
- Added on: 20.09.2009 | hits: 84
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- The National Lyme Disease Memorial Park Project
- Category: Start / Lyme Disease / Support Groups / National
The National Lyme Disease Memorial Park Project is dedicated to all who have experienced the ramifications of Lyme and other tickborne associated diseases.
This Project encompasses both a virtual and a physical place. It will serve everyone who has been touched by these devastating illnesses -the patients who struggle to recover their health and their lives, the family and friends who love them, the advocates, activists and researchers fighting to make necessary changes and the physicians who are providing us help with steadfast and extraordinary courage.
The Memorial website was created for and will be maintained as a virtual educational hub for those who have personally dealt with or who now question the seriousness of chronic Lyme and tickborne associated fatalities. In particular, it will list names and some condensed obituaries of those who have passed away, so that we may not forget them or the high toll of these diseases.- Added on: 20.09.2009 | hits: 83
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- The California Lyme Disease Association (CALDA)
- Category: Start / Lyme Disease / Support Groups / State / California
The California Lyme Disease Association (CALDA) is a non-profit corporation acting as the central voice for all tick-borne disease issues in California and a supporting voice for national issues. Through research, advocacy, and education of the public and healthcare professionals, CALDA seeks to prevent tick-borne diseases, encourage early diagnosis, and improve the quality of healthcare provided to people with tick-borne diseases.
- Added on: 20.09.2009 | hits: 73
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- Santa Cruz Lyme Support Group
- Category: Start / Lyme Disease / Support Groups / State / California
This group is for the communication among the participants of Santa Cruz Lyme Support Group.
The membership is open to those who meet the two criterion below: 1. A Lyme patient or a care-taker of a Lyme patient
2. The Lyme patient lives in Santa Cruz or attends Santa Cruz support group meeting.
Steps to join (and ignore this if you were already a member):
1. Click on the link for joining on this page and follow direction.
2. When you are asked the reason to join, state how you fit the qualification described above.
3. Your will receive an email asking for your qualification. If you've already given the answer in step 2 above, disregard it.
4. Wait for the notice email of the status of your membership. Once you are approved, you will start receiving email from this group.
You must communicate your qualification in this process. Otherwise, you will not be approved.- Added on: 20.09.2009 | hits: 61
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- ArizonaLyme · Arizona Online Lyme Support
- Category: Start / Lyme Disease / Support Groups / State / Arizona
This is a reference and support group for Lyme (and associated diseases) patients, their care givers, medical professionals, and anyone else interested in knowing more about this disease and how to cope with it.
We are a service of the Arizona Lyme Disease Association (AZLDA), a branch of the national Lyme Disease Association (LDA). We support the International Lyme and Associated Diseases Society (ILADS), which is physician run.
The Arizona Lyme Disease Association support group also meets in real time at Scottsdale's via Linda Senior Center, 10440 N. Via Linda Scottsdale, AZ 85259 (480) 312-5810. Meeting times are 2:00 to 4:00 p.m., the third Saturday of every month. Additionally there are occasional meetings in Tucson and Flagstaff. Check this site for announcements.
MISSION STATEMENT: The mission of the Arizona Lyme Disease Assocations is threefold:
1) Support;
2) Education;
3) Advocacy.
We support those who are ill with Lyme and associated diseases, while we educate the public and the medical community of the dangers and the latest research. We also advocate for better knowledge of Lyme disease within the medical community, and for research into and development of new treatment methods.
For details on understanding Lyme disease, please refer to the following Web sites:
http://www.canlyme.com/patsymptoms.html
http://www.ilads.org/basic.html
http://www.chkd.org/HealthLibrary/Content.aspx?pageid=P02833
http://www.amytan.net/LymeDisease.aspx
In 2006 there were 5 reported cases of Lyme disease in Maricopa County alone. These statistics are misleading. Doctors recognize and report only one case per 100 by CDC estimates, and Lyme disease is not a mandatory reportable disease in this state. Actual cases - those both diagnosed and undiagnosed - may be 1000 times reported cases.- Added on: 20.09.2009 | hits: 59
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- East Bay Lyme Disease Support Group
- Category: Start / Lyme Disease / Support Groups / State / California
This is for email communication among members of East Bay Lyme Disease Support Group, which has a monthly meeting on the 2nd Wednesday in San Ramon, California.
East Bay Lyme Support Group is led by processes which are established by its members. We encourage everybody to bring suggestion to our support group meeting or this Yahoo Group to improve our processes.
To find out more about our group, please visit our home page http://www.LymeGroups.org/EastBay
To join this group, you would need to be a Lyme patient or care taker who either live in the East Bay area or has come to our support group meeting in San Ramon.- Added on: 20.09.2009 | hits: 54
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- The Finger Lakes Lyme Disease Support Group
- Category: Start / Lyme Disease / Support Groups / State / New York
The Finger Lakes Lyme Disease Support Group meets approximately every month to provide support for Lyme Disease patients and their families.
This mailing list will carry announcements of meetings as well as provide a means for discussion among our members between meetings.
For questions about the mailing list, please contact Joy Veronneau, joy@lightlink.com.
For questions about the Finger Lakes Support Group, please contact Marianne, bigpapa@clarityconnect.com.- Added on: 20.09.2009 | hits: 50
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- California Online Lyme Support
- Category: Start / Lyme Disease / Support Groups / State / California
California Online Lyme Support is a virtual meeting place and source for information and emotional support for people with Lyme and other tick-borne diseases living in California.
Certain areas of California have a high risk of Lyme disease. In 2007 CDPH reported 107 cases, but this represents only a fraction of actual cases. A single lab reported >1,000 positive cases in 2007, but if they don't meet the narrow CDC criteria, they are not counted.
Ticks are so small most people don't realize they have been bitten. If the tick that bites you is infected, it can inject Lyme bacteria into your bloodstream within hours of attachment. If you don't remove the tick, infection will occur in almost 100%. The bacteria invade your brain in less than 24 hours and can hide for decades. As people age and their immune systems become weaker, hidden infections may start to become a problem.
Doctors recognize and diagnose only a fraction of true cases. they often prefer more familiar labels like chronic fatigue, MS, fibromyalgia, or even mental illness - all Lyme disease mimics. Anyone suspecting s/he might have a tick-borne illness should use the search tool on the LDA website (see link below) to find a Lyme specialist.
California has a law protecting doctors who treat chronic persistent Lyme disease, provided certain conditions are met.
CALDA supports the federal bills HR 1179 and S 1352 to improve tests used to diagnose Lyme disease; enhance the public health surveillance systems and improve our public education campaign to prevent new cases of Lyme disease; and create a federal task force. Please ask your legislators to support this bill.
DISCLAIMER: All information posted on this site is the opinion of the author(s) alone and is provided for educational purposes only. It is not to be construed as medical advice regarding the treatment of any symptoms or disease. Medical advice of your personal physician should be obtained before pursuing any course of treatment.- Added on: 20.09.2009 | hits: 49
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- The Lyme Disease Association of Southeastern Pennsylvania, Inc.
- Category: Start / Lyme Disease / Support Groups / State / Pennsylvania
Lyme Disease Association of Southeastern Pennsylvania, Inc. P. O. Box 181
Pocopson, PA 19366-0181
610-388-7333
LDASEPA is a 501 (c) (3) nonprofit charitable organization- Added on: 20.09.2009 | hits: 49
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- Michigan Lyme Disease Association
- Category: Start / Lyme Disease / Support Groups / State / Michigan
The Michigan Lyme Disease Association, Inc. (MLDA) is a statewide non-profit 501c3 organization founded in 1989. The organization not only develops programs to promote awareness and prevention of this disease; but also educates the public and health care professionals about Lyme Disease and other Tick-Borne illnesses.
The MLDA maintains statewide support groups that allow members to obtain practical information and guidance. TickTalk, the organization's bi-monthly newsletter, also gives timely information about Lyme Disease and the MLDA's activities. With the assistance of private donations and public fundraising, the MLDA has accomplished ambitious goals since its founding. This includes a research study tracking the distribution of Lyme Disease in dogs throughout southeastern Michigan and organizing the state's first fully accredited conference on Lyme Disease and other Tick-Borne illnesses as part of a public awareness campaign. Your involvement can help the MLDA continue to develop new strategies to encourage public awareness.- Added on: 20.09.2009 | hits: 45
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- Vermont Lyme Network
- Category: Start / Lyme Disease / Support Groups / State / Vermont
We are a group of people in Vermont with Lyme disease, along with our friends, family, and supporters, who have joined together to support each other, and to provide a source of reliable information about tick-borne diseases, particularly Lyme disease.
In our own search for information and in our daily contacts with people in our communities, we discovered that while there is intense interest, there is little reliable information about Lyme Disease in Vermont. This is true both for the average citizen and for the medical community-- unless they turn to resources outside this state, as we have.
This website was our first project, because the need for information is so great. We want to reach both people whose lives might be affected, and the medical community with accurate information about Lyme disease, treatment, and prevention.
We hope you will join us, for information and mutual support. We have an email support group for Lyme patients, too-- to join, click on the link at the right.- Added on: 20.09.2009 | hits: 44
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- Public Health Alert
- Category: Start / Lyme Disease / Support Groups / National
Public Health Alert (PHA) is a newspaper committed to researching and investigating Lyme Disease and other chronic illnesses in the United States. We have joined forces and informational resources with local and nation wide support group leaders. These groups include the chronic illnesses of Multiple Sclerosis (MS), Lou Gherig's Disease (ALS), Lupus, Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS), and various other illnesses of unknown origins.
Public Health Alert seeks to bring information and awareness about these illnesses to the public attention as well as a broad base of health and nutritional news. We seek to make sure that anyone struggling with these diseases has proper support emotionally, physically, spiritually, mentally, and medically.
PHA is a free monthly newspaper. We function on the sale of advertising space and donations from the public. We have nationwide distribution.- Added on: 20.09.2009 | hits: 43
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- Lyme Disease Association, Inc.
- Category: Start / Lyme Disease / Support Groups / National
The Lyme Disease Association (LDA), an organization which expanded its focus nationally about 7 years ago, is dedicated to Lyme disease education, prevention, and raising research dollars. About ninety-six cents of every dollar raised by the Lyme Disease Association has been used on programs. In its search for a cure for chronic Lyme, the LDA has already funded dozens of research projects coast to coast through researchers at institutions such as Columbia University College of Physicians & Surgeons, NJ Medical School (UMDNJ), Fox Chase Cancer Center, University of California, Davis, and University of Pennsylvania. Some of the research has been featured in peer-reviewed journals, such as Journal of the American Medical Association (JAMA), The Proceedings of the National Academy of Science, The Psychiatric Clinics of North America, Infection, Journal of Neuropsychiatry and Clinical Neurosciences, JSTBD, Journal of Clinical Microbiology, Journal of International Neuropsychological Society, and Infection and Immunology. Very significant genome work initially funded by LDA has shown that different strains of Borrelia have the ability to exchange genetic material among themselves, a trait greatly benefiting their survival and probably confounding the body's ability to eradicate the organism.
- Added on: 20.09.2009 | hits: 42
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- Southeastern Wisconsin & Illinois Lyme Leagues
- Category: Start / Lyme Disease / Support Groups / State / Illinois
Dedicated to Raising Awareness and Providing Information For Lyme Disease and Related Illnesses. Serving WI-IL-MN-IA Regional Areas but all are welcome!
- Added on: 20.09.2009 | hits: 40
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- Lyme Disease Support Group (LDSG) of Oklahoma
- Category: Start / Lyme Disease / Support Groups / State / Oklahoma
Lyme Disease Support Group (LDSG) of Oklahoma is an informal group led by volunteers for the purpose of providing education, public awareness, and advocating for those suffering from Lyme Disease/STARI and other tick-borne bacterial infections. Our mission is to eliminate the isolation felt by those affected, empower members through information and support, exchange experiences and coping skills, and assist family and friends of patients. LDSG interacts with federal and state agencies, medical schools, health care communities, research centers and educational venues, national organizations and foundations; and participates in public policy and legislative efforts, insurance and government assistance issues.
- Added on: 20.09.2009 | hits: 40
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- Lyme Disease Network of Middle Tennessee
- Category: Start / Lyme Disease / Support Groups / State / Tennessee
To provide information, resources, and support to those who are infected or suspect they may be infected with Lyme and/or other tick borne diseases. Also to promote awareness and prevention within our community.
Lyme disease is a rapidly growing epidemic and ticks do not know geographical boundaries such as state lines. Greater than AIDS, West Nile Virus, and Avian Flu combined it will only get worse without funding for education and research.
Lyme disease masquerades as many other illnesses such as fibromyalgia, rheumatoid arthritis, MS and auto-immune diseases. It is much more difficult to eradicate in its later stages. Prevention or early detection and treatment is essential.
We are not alarmists but rather realists who have experienced Lyme here in Middle Tennessee and wish to warn others about this potentially debilitating disease and to help those who are suffering its effects.
Educate yourself…you may have to educate your physician.- Added on: 20.09.2009 | hits: 38
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- Lyme Association of Greater Kansas City
- Category: Start / Lyme Disease / Support Groups / State / Kansas
The Lyme Association of Greater Kansas City was formed for the purpose of preventing tick-borne diseases in Kansas and Missouri and improving the healthcare of people with tick-borne diseases through education, advocacy, support, and research.
The LAGKC is a 501(c)3 non-profit corporation under the laws of the State of MIssouri. Any donations are tax-deductible.- Added on: 20.09.2009 | hits: 37
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- The Texas Lyme Disease Association, Inc.
- Category: Start / Lyme Disease / Support Groups / State / Texas
The Texas Lyme Disease Association, Inc., (TXLDA) was formed for the purpose of preventing tick-borne diseases in Texas and improving the healthcare of people with tick-borne diseases through education, advocacy, support, and research. The service area of the TXLDA is the geographic boundaries of the State of Texas and adjoining states.
The TXLDA is a 501(c)3 non-profit corporation under the laws of the State of Texas. Any donations made to support the TXLDA are tax-deductible.- Added on: 20.09.2009 | hits: 36
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- Butte County Lyme Disease Support Group
- Category: Start / Lyme Disease / Support Groups / State / California
This site is created to assist those in Butte County CA who are suffering from Lyme and other tick-borne diseases. It is open to all who have been to our meetings, and those who are too ill to attend. I hope you will find this site useful and informative, and come back often.
- Added on: 20.09.2009 | hits: 35
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- North Carolina Lyme Disease Foundation, Inc.
- Category: Start / Lyme Disease / Support Groups / State / North Carolina
The North Carolina Lyme Disease Foundation, Inc. is a non-profit organization that works to increase community awareness and provide support to those with Lyme Disease. The foundation was started in September of 2002 by Dr. Beth Jordan and Fonda Notch, who have both battled the disease and wanted to reach others who are trying to find out more about this controversial illness. The NCLDF is not affiliated with any other organizations, and the purposes for which the Foundation is organized are exclusively charitable, scientific, literary, and educational. The intention of this website is to provide materials to educate the public about Lyme Disease.
- Added on: 20.09.2009 | hits: 35
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- Boston Area Support & Information
- Category: Start / Lyme Disease / Support Groups / State / Massachusetts
Everyone is welcome to join us for these meetings! The meetings consist of presentations, videos, sharing of new information and time for support. Please feel free to email an area group leader with any questions!
- Added on: 20.09.2009 | hits: 35
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- Lyme Disease Coalition of Minnesota
- Category: Start / Lyme Disease / Support Groups / State / Minnesota
The objective of the Lyme Disease Coalition of Minnesota is to Network with others concerned with Lyme Disease and to work toward the accomplishment of:
-- The Education and support of health care professionals, researchers and people at risk.
-- The Promotion of understanding and awareness of Lyme Disease leading to effective prevention, diagnosis and treatment.
-- To broaden the network of people who would like to work with the LDCM.- Added on: 20.09.2009 | hits: 34
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- Rhode Island victims of Lyme disease
- Category: Start / Lyme Disease / Support Groups / State / Rhode Island
A support group message board for Rhode Island victims of Lyme disease. A place to ask questions , share information and contact other local victims to get together for rides to the doctor. Also a home page for Support Groups to post meeting times and information. ATTENTION = NO SPAM WILL BE TOLERATED, those members will be moderated.
- Added on: 20.09.2009 | hits: 34
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- The LONG ISLAND LYME ALLIANCE
- Category: Start / Lyme Disease / Support Groups / State / New York
LILA-The LONG ISLAND LYME ALLIANCE is a support group for people with Lyme Disease and related tick diseases. We also run some fun social events.
This mailing list will keep you posted on our meetings, our special events and occasionally we include information on other local Lyme groups and events of interest to you.
You will find that our meetings are casual, friendly, positive, helpful, informative, supportive and fun.
This is an *announcement only* list that will not flood your mailbox. We only send out a few messages every month.
Got Lyme? Join up and join us at our next meeting or social event!
If you live in New York: Nassau, Suffolk, Queens, Brooklyn, Staten Island, Bronx, Manhattan, Lower Westchester, NYC ... LILA meetings are probably closer than your LLMD.- Added on: 20.09.2009 | hits: 32
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- Washington Lyme Support
- Category: Start / Lyme Disease / Support Groups / State / Washington
The intention of this group is to create a dynamic space where people, family and friends impacted by Lyme Disease can come for support, education and community. A place where people really do *get* your life.
While this site is primarily directed towards people from Washington State and the North-West, people are welcome regardless of the geographic location.
The ownership, and responsibility, of this board falls on the group as a whole-not one individual. As such, people will be expected to moderate themselves. The rules are pretty straightforward, follow the Yahoo Groups Rules, no flaming, respect everyone and their treatment choices, no selling products. People are good and most are responsible and know how to behave towards others. It is up to all of us to make the board a welcoming, functioning place.- Added on: 20.09.2009 | hits: 32
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- The Lyme Disease Network of South Carolina
- Category: Start / Lyme Disease / Support Groups / State / South Carolina
The Lyme Disease Network of SC is a regionally based, nonprofit organization dedicated to Lyme Disease awareness and patient support. Its goals are:
1. Community education to include providing information to health care providers and patients. Public awareness activities are geared toward prevention and the understanding of Lyme Disease risks.
2. Generating financial support for Lyme Disease awareness and research.
3. Community support for patients and families with Lyme Disease by encouraging active networking and participation in support groups and volunteer activities.- Added on: 20.09.2009 | hits: 31
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- The Lyme Disease Association of Ohio
- Category: Start / Lyme Disease / Support Groups / State / Ohio
The Lyme Disease Association of Ohio, an organization of all individuals interested in Lyme disease including patients, physicians, nurses, and other healthcare professionals, supports Lyme disease patients, the professionals who work with them, and the people at risk in Ohio by educational projects and by advocacy for those with the disease and those directly and indirectly affected by the disease, its diagnosis and treatment.
- Added on: 20.09.2009 | hits: 27
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- LymeResourceGroupMarin
- Category: Start / Lyme Disease / Support Groups / State / California
The Lyme Resource Group (Marin County, CA) is "dedicated to actively pursuing traditional and complementary approaches to overcoming Lyme disease and all of its associated anomalies through research, sharing information and documenting results." Meetings are held the second Thursday of the month, venue varies and is posted via email. This forum provides a source for members to post information on upcoming events, initiate carpools, and post files or articles shared in meetings.
- Added on: 20.09.2009 | hits: 26
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- Oregon Lyme Disease Network
- Category: Start / Lyme Disease / Support Groups / State / Oregon
Oregon Lyme Disease Network is a 501(3)C non profit organization established to assist Oregon patients in understanding lyme disease, and educating state officials, physicians and others on current trends in Lyme Disease diagnosis and treatments.
- Added on: 20.09.2009 | hits: 25
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About Me
- I have Lyme Disease and I am in no way an expert nor am I giving any type of professional advise on the topic. I am tired of living with Lyme Disease and it's many symptoms, but I am stuck until they find a cure or something that makes me feel better. I remember when I first got diagnosed with Lyme Disease and how I felt so hopeless and helpless, I felt stuck. Today I am no longer hopeless and helpless and my hope is that I can help at least one person get out of that feeling.
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Today's events
- 02-07-2012
- No events scheduled.
Upcoming events
No upcoming events.Prevention Tips
2. WEAR LONG SLEEVES & LONG PANTS. Tuck the legs into your socks. Light-colored clothes make it easier to spot ticks.
3. STAY IN THE MIDDLE OF TRAILS. Don't brush against leaves and weeds or hike through the underbrush.
4. USE AN INSECT REPELLENT. Follow manufacturers directions.Look for ones containing 25-35% DEET.
5. CHECK FOR TICKS OFTEN. Crawling ones can be brushed off carefully.
6. PLACE CLOTHES IN A DRYER. A 1/2 hr. dryer high heat cycle will destroy ticks which might be hiding in clothing. the scalp, and behind the ears.
7. DO A THOROUGH TICK CHECK. Ticks crawl upward until they are stopped..Check legs, waistline, bra line, and armpits, and ask a family member to help check scalp, back, etc.
8. USE REPELLENTS AND CHECK YOUR PETS before they enter the house for crawling or attached ticks. 9. HUNTERS AND TRAPPERS SHOULD HANG ANIMAL CARCASSES AWAY FROM BUILDINGS. Put a bucket of bleach water under the animal to catch any ticks falling off. Wear rubber gloves when field dressing or handling meat to minimize chances for infection.