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   The Lyme Disease Foundation 

The Lyme Disease Foundation (LDF) is the premier nonprofit dedicated to finding solutions for tick-borne disorders. Realizing the ability to find solutions involves a multi-discipline effort, the LDF includes the four cornerstones of progress (businesses, patients, government, and the medical community) to work together to find solutions to tick-borne disorders. The LDF is the only tick-related charity to meet federal standards to qualify as national nonprofit and has strong ties to the international scientific community. The LDF has an active media outreach, education (medical and public) and research programs. The headquarters is staffed by a team of full-time professionals, has a modest library of articles, is highly computerized, and has a database of about 100,000 tick-borne disease aware households. 87% of every donation goes directly to programs, with 13% supporting those programs. The LDF was cofounded in 1988 by Karen Vanderhoof-Forschner, MBA, CPCU, CLU and Thomas E. Forschner, MBA, CPA at the request of researchers seeking a scientific forum where they could present a wide range of research results, conduct vigorous debate, nurture friendships, and foster new collaborations. They believed Lyme disease was serious and pervasive enough to need its own staffed nonprofit. This diverse and dedicated team of board members trailblazed into a world unaware of this disease, raising awareness from 0% to 88% within 2 years. The Forschner's were seeking help for Jamie their son, who was born with and suffered from Lyme disease. Although Jamie died in 1991 during a relapse, this team continues on in the hope that others will be spared from suffering similar anguish. Tick-borne disorders include: babesiosis, cat scratch disease (Bartonella), ehrlichiosis, Colorado tick fever, Lyme disease, Masters' disease, Query fever (potential biowarfare agent), Powassan encephalitis, relapsing fever (potential biowarfare agent), Rocky Mountain spotted fever, tick paralysis, & tularemia (potential biowarfare agent).

Added on: 09.20.2009 | hits: 144

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   The National Lyme Disease Memorial Park Project 

The National Lyme Disease Memorial Park Project is dedicated to all who have experienced the ramifications of Lyme and other tickborne associated diseases.

This Project encompasses both a virtual and a physical place. It will serve everyone who has been touched by these devastating illnesses -the patients who struggle to recover their health and their lives, the family and friends who love them, the advocates, activists and researchers fighting to make necessary changes and the physicians who are providing us help with steadfast and extraordinary courage.

The Memorial website was created for and will be maintained as a virtual educational hub for those who have personally dealt with or who now question the seriousness of chronic Lyme and tickborne associated fatalities. In particular, it will list names and some condensed obituaries of those who have passed away, so that we may not forget them or the high toll of these diseases.

Added on: 09.20.2009 | hits: 102

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   Public Health Alert 

Public Health Alert (PHA) is a newspaper committed to researching and investigating Lyme Disease and other chronic illnesses in the United States. We have joined forces and informational resources with local and nation wide support group leaders. These groups include the chronic illnesses of Multiple Sclerosis (MS), Lou Gherig's Disease (ALS), Lupus, Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS), and various other illnesses of unknown origins.

Public Health Alert seeks to bring information and awareness about these illnesses to the public attention as well as a broad base of health and nutritional news. We seek to make sure that anyone struggling with these diseases has proper support emotionally, physically, spiritually, mentally, and medically.

PHA is a free monthly newspaper. We function on the sale of advertising space and donations from the public. We have nationwide distribution.

Added on: 09.20.2009 | hits: 57

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   Lyme Disease Association, Inc. 

The Lyme Disease Association (LDA), an organization which expanded its focus nationally about 7 years ago, is dedicated to Lyme disease education, prevention, and raising research dollars. About ninety-six cents of every dollar raised by the Lyme Disease Association has been used on programs. In its search for a cure for chronic Lyme, the LDA has already funded dozens of research projects coast to coast through researchers at institutions such as Columbia University College of Physicians & Surgeons, NJ Medical School (UMDNJ), Fox Chase Cancer Center, University of California, Davis, and University of Pennsylvania. Some of the research has been featured in peer-reviewed journals, such as Journal of the American Medical Association (JAMA), The Proceedings of the National Academy of Science, The Psychiatric Clinics of North America, Infection, Journal of Neuropsychiatry and Clinical Neurosciences, JSTBD, Journal of Clinical Microbiology, Journal of International Neuropsychological Society, and Infection and Immunology. Very significant genome work initially funded by LDA has shown that different strains of Borrelia have the ability to exchange genetic material among themselves, a trait greatly benefiting their survival and probably confounding the body's ability to eradicate the organism.

Added on: 09.20.2009 | hits: 55

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