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Lyme Disease Resources

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The IOM Committee on Lyme Disease and Other Tick-borne Diseases: The State of the Science is interested in hearing from those who were unable to participate in the April planning meeting in preparation for the fall workshop on Oct 11-12th. To this end, the committee is hosting a series of listening sessions which will allow interested parties to participate in a teleconference with the committee. The committee is interested in hearing from individuals who are interested in the subject and would like to suggest science areas and/or speakers that may be helpful to the committee as they continue to plan the workshop. All individuals, whether they want to listen or make brief comments, will need to preregister. We regret that registration will be limited and we will only be able to allow people to comment who note on their registration that wish to do so. More information regarding call-in information will be provided post registration.

The listening sessions are region specific. In order to maintain a level of fairness, it is asked that you only sign up and participate in the call relating to your geographic region. If you are not able to attend, you may still submit comments to the Committee at lymedisease@nas.edu

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Take Action Now:

NatCapLyme is working on getting Doctor's Protection in Virginia.  If you live in Virginia, you need to contact your Senators & Delegates immediately and tell them to support H.B. 512 Bill.

"The single most important aspect of this legislation is that a physician can treat with antibiotics for more than 4 weeks without the fear of disciplinary action."

Visit NatCapLyme website for more information about the bill: http://www.natcaplyme.org/index.php?module=Pagesetter&func=viewpub&tid=10&pid=1

1/21 : Important Update

Virginia Legislative Action Alert & “Heads Up”

1/25 : Important Update

Virginia Lobby Day: Come to Richmond this coming Wednesday, January 27th, 2010

 

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NatCapLyme announced The Howard County Chronic Lyme Disease Association will be transforming into the Howard County Chapter of The National Capital Lyme and Tick-Borne Disease Association.

NatCapLyme welcomed this dedicated group to its family of support and advocacy chapters. Meetings will be on the 2nd Sunday of each month at the Bethany Lane Baptist Church, 3030 Bethany Lane, Ellicott City, MD 21042. The next meeting will be November 8th at 3 PM. This new Howard County chapter will be instrumental in responding to the growing needs of Lyme patients throughout Maryland.

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Introduction

EXCERPT

Written by: Ken Singleton, M.D.
February 2008, Paperback -523 pages
Order The Lyme Disease Solution
 Do you suffer from health problems that your doctors can't seem to get a handle on? Are you in pain, or tired all the time, or often unable to think straight? Is the quality of your life slipping away despite everything that you and your doctor have tried? If you answered "yes" to any of these questions, it is very possible that you are suffering from a health problem that is often ignored or misdiagnosed;Lyme disease. And you are not alone. Lyme is a problem that has left untold numbers of others suffering with a similar range of debilitating symptoms. To make problems even worse, Lyme disease is often accompanied by other tick-borne infections.

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Diagnostic Hints & Treatment Guidelines For Lyme & Other Tick Borne Illnesses


Written by: Joseph J. Burrascano Jr., M.D.
Sixteenth Edition , Copyright October, 2008
Board Member, International Lyme and Associated Diseases Society

DISCLAIMER: The information contained in this monograph is meant for informational purposes only. The management of tick-borne illnesses in any given patient must be approached on an individual basis using the practitioner's best judgment.

WELCOME!

Welcome to the sixteenth edition of the Guidelines. Amazingly, this edition is not only the sixteenth in the series, but as the first edition appeared in 1984, this reflects twenty four years of effort!

Since the last edition, enough new information has become available to justify this revision. New insights regarding co-infections, tests and treatment regimens are included. Nearly every item has been revised, but despite great effort to condense the information, the huge amount of new information included here has resulted in more pages than ever. Information included here is based on the literature, presentations at scientific meetings, the many valuable observations noted by my colleagues, plus experience from caring for my own patients. I have tried to make this information as up-to-date as possible and as inclusive as is practical. Please use the information presented in this document as an information resource and guide. It can never replace your own experience and clinical judgment.

I once again extend my best wishes to the many Lyme patients and their caregivers whose wisdom I deeply appreciate, and a sincere thank you to my colleagues whose endless contributions have helped me shape my approach to tick borne illnesses. I hope that this new edition proves to be useful. Happy reading!

Download PDF:Diagnostic Hints and Treatment GuidelinesDiagnostic Hints and Treatment Guidelines - by Joseph Burrascano, M.D.


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May 16 09


What is Lyme Disease anyway?  Is there a cure for this disease? I've been living with the disease since July 2003 and I've just learned to deal with it because there is no cure.  I remember feeling my hopes dashed when I got really sick and my doctor told me that I had to "let it run its course".  Well everything I had read told me other wise and here I am 6 years later and I am still sick.  I've decided that I am going to start writing about it because I'm ticked off.

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  • 07-29-2010
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Prevention Tips

1. BEWARE OF TICKS. Ticks do not hop, or fly, they crawl toward a host when detecting body heat, or carbon dioxide. Ticks live in weedy areas. Tall grass, leaf litter, low shrubs, underbrush, and field and trail edges are favored. In highly infected areas, lawns may have ticks.
2. WEAR LONG SLEEVES & LONG PANTS. Tuck the legs into your socks. Light-colored clothes make it easier to spot ticks.
3. STAY IN THE MIDDLE OF TRAILS. Don't brush against leaves and weeds or hike through the underbrush.
4. USE AN INSECT REPELLENT. Follow manufacturers directions.Look for ones containing 25-35% DEET.
5. CHECK FOR TICKS OFTEN. Crawling ones can be brushed off carefully.
6. PLACE CLOTHES IN A DRYER. A 1/2 hr. dryer high heat cycle will destroy ticks which might be hiding in clothing. the scalp, and behind the ears.
7. DO A THOROUGH TICK CHECK. Ticks crawl upward until they are stopped..Check legs, waistline, bra line, and armpits, and ask a family member to help check scalp, back, etc.
8. USE REPELLENTS AND CHECK YOUR PETS before they enter the house for crawling or attached ticks.
9. HUNTERS AND TRAPPERS SHOULD HANG ANIMAL CARCASSES AWAY FROM BUILDINGS. Put a bucket of bleach water under the animal to catch any ticks falling off. Wear rubber gloves when field dressing or handling meat to minimize chances for infection.