The IOM Committee on Lyme Disease and Other Tick-borne Diseases: The State of the Science is interested in hearing from those who were unable to participate in the April planning meeting in preparation for the fall workshop on Oct 11-12th. To this end, the committee is hosting a series of listening sessions which will allow interested parties to participate in a teleconference with the committee. The committee is interested in hearing from individuals who are interested in the subject and would like to suggest science areas and/or speakers that may be helpful to the committee as they continue to plan the workshop. All individuals, whether they want to listen or make brief comments, will need to preregister. We regret that registration will be limited and we will only be able to allow people to comment who note on their registration that wish to do so. More information regarding call-in information will be provided post registration.

The listening sessions are region specific. In order to maintain a level of fairness, it is asked that you only sign up and participate in the call relating to your geographic region. If you are not able to attend, you may still submit comments to the Committee at lymedisease@nas.edu. 

Take Action Now:

NatCapLyme is working on getting Doctor's Protection in Virginia.  If you live in Virginia, you need to contact your Senators & Delegates immediately and tell them to support H.B. 512 Bill.

"The single most important aspect of this legislation is that a physician can treat with antibiotics for more than 4 weeks without the fear of disciplinary action."

Visit NatCapLyme website for more information about the bill: http://www.natcaplyme.org/index.php?module=Pagesetter&func=viewpub&tid=10&pid=1

1/21 : Important Update

Virginia Legislative Action Alert & “Heads Up”

1/25 : Important Update

Virginia Lobby Day: Come to Richmond this coming Wednesday, January 27th, 2010

NatCapLyme announced The Howard County Chronic Lyme Disease Association will be transforming into the Howard County Chapter of The National Capital Lyme and Tick-Borne Disease Association.

NatCapLyme welcomed this dedicated group to its family of support and advocacy chapters. Meetings will be on the 2nd Sunday of each month at the Bethany Lane Baptist Church, 3030 Bethany Lane, Ellicott City, MD 21042. The next meeting will be November 8th at 3 PM. This new Howard County chapter will be instrumental in responding to the growing needs of Lyme patients throughout Maryland.

Introduction

Written by: Ken Singleton, M.D. February 2008, Paperback -523 pages Order The Lyme Disease Solution

Do you suffer from health problems that your doctors can't seem to get a handle on? Are you in pain, or tired all the time, or often unable to think straight? Is the quality of your life slipping away despite everything that you and your doctor have tried? If you answered "yes" to any of these questions, it is very possible that you are suffering from a health problem that is often ignored or misdiagnosed;Lyme disease. And you are not alone. Lyme is a problem that has left untold numbers of others suffering with a similar range of debilitating symptoms. To make problems even worse, Lyme disease is often accompanied by other tick-borne infections.

Diagnostic Hints & Treatment Guidelines For Lyme & Other Tick Borne Illnesses

Diagnostic Hints and Treatment Guidelines - by Joseph Burrascano, M.D.

What is Lyme Disease anyway?  Is there a cure for this disease? I've been living with the disease since July 2003 and I've just learned to deal with it because there is no cure.  I remember feeling my hopes dashed when I got really sick and my doctor told me that I had to "let it run its course".  Well everything I had read told me other wise and here I am 6 years later and I am still sick.  I've decided that I am going to start writing about it because I'm ticked off.